Special community on Facebook

26 february 2013

Dear friends!

We organized a special community on Facebook. We welcome  all those who in any way associated with the disease, “Long QT syndrome”. The fact is that each of us are feeling that we are alone in their disease, but in fact it is not. Our country is huge. So many people just do not know about their disease. For this purpose is   the business "Crystal Heart".

We already know about "Long QT" and we are  living  with it, so it is necessary to unite. Adults, children, we have to communicate with each other, share issues, excitement, joy. After all, many of us grew up with this disease, someone did the operation, someone got married, married and had born children. It is necessary to share information, it's a great experience, that can help all others.

Find us on Facebook  «Long QT Russia»